Table 1 Characteristics of parents/ guardians

Gender

Female

n = 33 (89%)

Male

n = 4 (11%)

Age

Mean = 40.73 years

Standard Deviation = 7.01

Race

White

n = 35 (95%)

Asian

n = 2 (5%)

Carrier of 16p11.2 del/dup

Carrier

n = 5 (14%)

Non-carrier

n = 20 (54%)

Untested

n = 12 (32%)

Highest Education Level

Secondary School (core educational provision up to 18 years old)

n = 16 (43%)

Higher Education (additional studies resulting in national or degree level qualifications)

n = 21 (57%)

Current Employment

Full-time

n = 7 (19%)

Part-time

n = 9 (24%)

Unemployed/full-time carer

n = 21 (57%)