Table 1 Descriptive characteristics of pre-pandemic and during pandemic participants

Age, mean (SD/range)

39 (11.2, 19–66 years)

–

41.3 (11.2, 21–68 years)

–

Sickle cell disease severity

High severity

–

–

28

28.9

Low severity

–

–

69

71.1

Sex

Male

37

38.14

36

37.1

Female

60

61.86

61

62.9

Race/ethnicity

Black/African American^a

93

96.9

89

94.7

Hispanic^b

6

6.3

6

6.5

Insurance status

Private^c

49

51

44

45.4

Medicare/medicaid/Medigap/SCHIP

33

34.4

34

35.1

Government health insurance^d

4

4.2

7

7.2

No coverage

10

10.4

–

–

Education

Some college and below^e

47

48.5

37

38.1

Bachelor’s/master’s degree

44

45.4

44

45.3

Professional/doctoral degree

6

6.2

5

5.2

Marital status

Married/living with partner

30

30.9

40

41.2

Divorced/separated/widowed

13

13.4

12

12.4

Never married

54

55.7

45

46.4

Income

Less than $10k - $29k

34

36.6

28

29.8

$30k - $59k

29

31.2

31

33

$60k - $90k

13

14

13

13.8

Greater than $90k

17

18.3

22

23.4

Employment status

Working currently

46

47.4

46

47.4

Retired/student/keeping house

14

14.4

12

12.4

Unemployed/looking for work/lost job

19

19.6

8

8.2

Disabled

18

18.6

23

23.7

Other

–

–

7

7.2