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Table 3 Characteristics of interviewed partners

From: User perspectives on a psychosocial blended support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: a qualitative study

  Completers (n = 17) Drop outs (n = 6)
Gender, n (%)
 Female 12 (70.6) 3 (50.0)
 Male 5 (29.4) 3 (50.0)
Age in years, mean (SD) 59.9 (10.9) 58.7 (13.4)
Education level, n (%)
 Low 1 (6.0)
 Medium 8 (47.0) 3 (50.0)
 High 8 (47.0) 3 (50.0)
Diagnosis partner, n (%)
 ALS 13 (76.5) 3 (50.0)
 PMA 4 (23.5) 3 (50.0)
Time since diagnosis in months, median (range) 33 (9–253) 35 (12–82)
Parameters patient
 ALSFRS-R, median (range) 25 (4–44) 24 (5–34)
 ALS-FTD-Q, median (range) 11 (0–38) 15.5 (8–33)
  1. Educational level: low = did not complete secondary school-completed low level secondary school; medium = completed medium level secondary school; high = completed upper level secondary school and/or university degree
  2. Abbreviations: ALS-FRS-R, Amyotrophic Lateral Sclerosis Functional Rating Scale-Revised; ALS-FTD-Q, Amyotrophic Lateral Sclerosis-Fronto Temporal Dementia-Questionnaire