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About You
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Demographics
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Age, gender, family composition, language, education, employment
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12
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13
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12
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Health insurance, financial status
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3
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Stressful life events
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Items adapted from Recent Life Events Questionnaire [48]
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14
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Diabetes history
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Diabetes type, treatment, duration, family history
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4
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4
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8
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Mood
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General quality of life
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Item from MIND Youth Questionnaire (MY-Q) [7] derived from Diabetes Quality of Life for Youth–Short Form [49]
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1
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1
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Well-being
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WHO-5 Well-being Scale [7, 50–52]
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5
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5
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5
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Depressive symptoms
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Patient Health Questionnaire for Adolescents (PHQ-A) [53, 54]
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8
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Anxiety
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Generalised Anxiety Disorder Scale (GAD-7) [55]
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7
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7
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Feelings About Diabetes
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Diabetes distress
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Problem Areas in Diabetes–Teen version (PAID-T) [19]
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26
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Problem Areas in Diabetes–Parent of Teens version (P-PAID-T) [29]
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26
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Family conflict
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Items from MY-Q [7] derived from the Diabetes Family Conflict Scale [56]
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2
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2
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Responsibility for diabetes management
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Items from MY-Q [7]
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2
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2
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Items modified from the Diabetes Family Responsibility Questionnaire [57]
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5
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Health & Health Checks
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General health
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Other health conditions
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1
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1
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1
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Weight, height
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2
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2
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Perceived healtha
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Self-rated health
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1
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Diabetic ketoacidosis (DKA)
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Incidence of diabetic ketoacidosis
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1
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3
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Worry about hyperglycaemia
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Items from the Hyperglycaemia Avoidance Scale [58]
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3
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Diabetes Care
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Blood glucose monitoringa
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Self-reported frequency of self-monitoring of blood glucose (SMBG)
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2
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2
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2
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HbA1c
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Self-reported HbA1c
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2
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2
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4
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Insulin managementa
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Insulin dose frequency
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1
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1
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1
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Insulin forgetting & omitting adapted from MY-Q [7] and Adolescent Diabetes Needs Assessment Tool (ADNAT) [59]
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3
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Hypoglycaemia
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Hypoglycaemia frequency
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Items adapted from Hypoglycaemia Awareness Questionnaire (HypoA-Q) [60]
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6
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7
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Hypoglycaemia awareness
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Gold score [61]
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1
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1
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Item adapted from HypoA-Q [60]
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1
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1
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Fear of hypoglycaemia
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Hypoglycaemia Fear Survey for parents (PHFS) and children (CHFS) [62]
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25
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25
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Technical/medical supporta
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Technology and hypoglycaemia
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2
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Communication with doctor about hypoglycaemia
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2
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Eating Habits
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Diabetes-specific eating behaviours
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Diabetes Eating Problem Survey-Revised (DEPS-R) [63]
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16
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Binge eating frequency adapted from MY-Q [7]
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1
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Body image
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Gender-specific body image silhouettes from BMI-based Silhouette Matching Test (BMI-SMT) [64, 65]
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3
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Health Care Team
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Patient-centred communication (PCC)
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PCC subscale of the Health Care Climate Questionnaire [66, 67]
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5
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5
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Treatment satisfaction
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Items from MY-Q [7]; derived from the Diabetes Treatment Satisfaction Questionnaire (DTSQs) [68]
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3
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3
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3
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Health professional supporta
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Free text: (what I wish health professionals knew…)
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1
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1
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1
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Transition
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Items adapted from Online Transition to Adulthood Surveys for Youth with Chronic Illness [69]
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3
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Diabetes carea
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Child’s diabetes healthcare providers & attendance
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7
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Support to Manage Diabetes
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Resilience
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Diabetes Strengths and Resilience Measure for Adolescents (DSTAR-Teen) [70]
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12
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12
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Self-efficacy
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Maternal Self-Efficacy for Diabetes Management Scale [71]
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17
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Social supporta
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Free text: (what I wish friends/teachers/general public knew about diabetes)
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2
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2
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3
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(what friends/teachers do to help)
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2
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2
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(what would make it easier for you/your child…)
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2
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Parental supporta
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2 free text: (what I wish my parents knew about diabetes; what my parent do to help me..)
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2
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2
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NDSS support
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Free text
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1
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1
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Technologya
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Use of ‘apps’ for diabetes management
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5
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5
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-
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Final comments
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Free text
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1
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1
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1
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Unique ID
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Child’s NDSS Number
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1
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1
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1
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