About You
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Demographics
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Age, gender, family composition, language, education, employment
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12
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13
|
12
|
Health insurance, financial status
| | |
3
|
Stressful life events
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Items adapted from Recent Life Events Questionnaire [48]
| | |
14
|
Diabetes history
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Diabetes type, treatment, duration, family history
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4
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4
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8
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Mood
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General quality of life
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Item from MIND Youth Questionnaire (MY-Q) [7] derived from Diabetes Quality of Life for Youth–Short Form [49]
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1
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1
| |
Well-being
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WHO-5 Well-being Scale [7, 50–52]
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5
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5
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5
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Depressive symptoms
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Patient Health Questionnaire for Adolescents (PHQ-A) [53, 54]
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8
| |
Anxiety
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Generalised Anxiety Disorder Scale (GAD-7) [55]
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7
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7
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Feelings About Diabetes
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Diabetes distress
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Problem Areas in Diabetes–Teen version (PAID-T) [19]
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26
| |
Problem Areas in Diabetes–Parent of Teens version (P-PAID-T) [29]
| | |
26
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Family conflict
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Items from MY-Q [7] derived from the Diabetes Family Conflict Scale [56]
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2
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2
| |
Responsibility for diabetes management
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Items from MY-Q [7]
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2
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2
| |
Items modified from the Diabetes Family Responsibility Questionnaire [57]
| | |
5
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Health & Health Checks
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General health
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Other health conditions
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1
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1
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1
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Weight, height
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2
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2
| |
Perceived healtha
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Self-rated health
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1
| |
Diabetic ketoacidosis (DKA)
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Incidence of diabetic ketoacidosis
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1
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3
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Worry about hyperglycaemia
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Items from the Hyperglycaemia Avoidance Scale [58]
| | |
3
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Diabetes Care
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Blood glucose monitoringa
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Self-reported frequency of self-monitoring of blood glucose (SMBG)
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2
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2
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2
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HbA1c
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Self-reported HbA1c
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2
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2
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4
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Insulin managementa
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Insulin dose frequency
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1
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1
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1
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Insulin forgetting & omitting adapted from MY-Q [7] and Adolescent Diabetes Needs Assessment Tool (ADNAT) [59]
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3
| |
Hypoglycaemia
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Hypoglycaemia frequency
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Items adapted from Hypoglycaemia Awareness Questionnaire (HypoA-Q) [60]
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6
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7
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Hypoglycaemia awareness
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Gold score [61]
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1
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1
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Item adapted from HypoA-Q [60]
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1
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1
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Fear of hypoglycaemia
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Hypoglycaemia Fear Survey for parents (PHFS) and children (CHFS) [62]
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25
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25
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Technical/medical supporta
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Technology and hypoglycaemia
| | |
2
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Communication with doctor about hypoglycaemia
| | |
2
|
Eating Habits
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Diabetes-specific eating behaviours
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Diabetes Eating Problem Survey-Revised (DEPS-R) [63]
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16
| |
Binge eating frequency adapted from MY-Q [7]
| |
1
| |
Body image
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Gender-specific body image silhouettes from BMI-based Silhouette Matching Test (BMI-SMT) [64, 65]
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3
| |
Health Care Team
|
Patient-centred communication (PCC)
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PCC subscale of the Health Care Climate Questionnaire [66, 67]
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5
|
5
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Treatment satisfaction
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Items from MY-Q [7]; derived from the Diabetes Treatment Satisfaction Questionnaire (DTSQs) [68]
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3
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3
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3
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Health professional supporta
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Free text: (what I wish health professionals knew…)
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1
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1
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1
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Transition
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Items adapted from Online Transition to Adulthood Surveys for Youth with Chronic Illness [69]
| | |
3
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Diabetes carea
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Child’s diabetes healthcare providers & attendance
| | |
7
|
Support to Manage Diabetes
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Resilience
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Diabetes Strengths and Resilience Measure for Adolescents (DSTAR-Teen) [70]
|
12
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12
| |
Self-efficacy
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Maternal Self-Efficacy for Diabetes Management Scale [71]
| | |
17
|
Social supporta
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Free text: (what I wish friends/teachers/general public knew about diabetes)
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2
|
2
|
3
|
(what friends/teachers do to help)
|
2
|
2
| |
(what would make it easier for you/your child…)
| | |
2
|
Parental supporta
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2 free text: (what I wish my parents knew about diabetes; what my parent do to help me..)
|
2
|
2
| |
NDSS support
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Free text
| |
1
|
1
|
Technologya
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Use of ‘apps’ for diabetes management
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5
|
5
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-
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Final comments
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Free text
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1
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1
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1
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Unique ID
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Child’s NDSS Number
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1
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1
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1
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