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Table 1 Scales meeting criteria of analyses

From: Measuring participation for persons with mental illness: A systematic review assessing relevance of existing scales for low and middle income countries

Scale

Total items Length (mins)

Key items that measure empowerment

Theory or conceptual definition

Articles identified in present review using scale

 

Used in LMIC’s

Key items that measure collective capability/ agency

  

Self-efficacy for social participation

27

15 mins

4. I feel I am a valuable person in society. 7. I can keep up with the changes in society. 18. If I try, I have the power to change society.

Bandura’s Self Efficacy Empowerment Social participation Social integration

Amagai, M., Suzuki, M., Shibata, F., & Tsai, J. (2012). Development of an instrument to measure self-efficacy for social participation of people with mental illness. Archives of psychiatric nursing,26 (3), 240–248.

 

No

20. There are people who accept me. 23. Others believe in my recovery.

  

Assessment of quality of life

15 10 mins

None

Health related quality of life theoretical model WHO model of impairment and disability (ICIDH)

Atlantis, E., Goldney, R. D., Eckert, K. A., & Taylor, A. W. (2012). Trends in health-related quality of life and health service use associated with body mass index and comorbid major depression in South Australia, 1998–2008. Quality of Life Research, 21 (10), 1695–1704.

 

No

9. Thinking about my health and my relationship with my family: A. My role in the family is unaffected by my health. B. There are some parts of my family role I cannot carry out. C. There are many parts of my family role I cannot carry out. D. I cannot carry out any part of my family role.

  

Schizophrenia quality of life questionnaire

18 10 mins

5. I feel free to make decisions. 6. I feel free to act.

Health related quality of life

Baumstarck, K., Boyer, L., Boucekine, M., Aghababian, V., Parola, N., Lançon, C., & Auquier, P. (2013). Self-reported quality of life measure is reliable and valid in adult patients suffering from schizophrenia with executive impairment. Schizophrenia research, 147 (1), 58–67.

 

No

10. I am helped and supported by my family. 11. My family pays attention to me 12. I am helped and supported by my friends or my relatives

  

Lehman’s Quality of Life Interview

26 15 mins

None

Quality of life

Chávez, L. M., Canino, G., Negrón, G., Shrout, P. E., Matías-Carrelo, L. E., Aguilar-Gaxiola, S., & Hoppe, S. (2005). Psychometric properties of the Spanish version of two mental health outcome measures: World Health Organization Disability Assessment Schedule II and Lehman’s Quality of Life Interview. Mental health services research,7 (3), 145–159.

 

No

How do you feel about: 9. The way you and your family act toward each other? 10. The way things are in general between you and your family?

  

International Classification of Functioning, Disability and Health

30 25 mins

None

WHO ICF

Tenorio-Martínez, R., del Carmen Lara-Muñoz, M., & Medina-Mora, M. E. (2009). Measurement of problems in activities and participation in patients with anxiety, depression and schizophrenia using the ICF checklist. Social psychiatry and psychiatric epidemiology, 44 (5), 377–384.

Checklist – Appendix 2

    
 

No

IV. Interpersonal Interactions (Capacity) (1) In your present state of health, how much difficulty do you have making new friends, without assistance? (2) How does this compare with someone, just like yourself only without your health condition? (Or: ”…than you had before you developed your health problem or had the accident?) (Performance) (1) In your present situation, how much of a problem do you actually have making friends? (2) Is this problem making friends made worse, or better, by anything (or anyone) in your surroundings? (3) Is your capacity to make friends, without assistance, more or less than what you actually do in your present surroundings? VI. Community, Social and Civic Life (Capacity) (1) In your present state of health, how much difficulty do you have participating in community gatherings, festivals or other local events, without assistance? (2) How does this compare with someone, just like yourself only without your health condition? (Or: ”…than you had before you developed your health problem or had the accident?) (Performance) (1) In your community, how much of a problem do you actually have participating in community gatherings, festivals or other local events? (2) Is this problem made worse, or better, by the way your community is arranged or the specially adapted tools, vehicles or whatever you use? (3) Is your capacity to participate in community events, without assistance, more or less than what you actually do in your present surroundings?