Table 5 Self-management tasks frequency by subscales

Coping tasks

(1) Deal with feelings of worry or sadness or fears that affect any or all of your daily life, including family and work relationships

Never (1)

Sometimes (2)

Mostly or Always (3)

(2) Allow for extreme tiredness or limited energy when planning your day

Never (1)

Sometimes (2)

Mostly or Always (3)

(3) Avoid/limit activities that you enjoy doing (e.g., social activities with family/friends, doing hobbies)

Never (1)

Sometimes (2)

Mostly or Always (3)

(4) Deal with unexpected or new problems in your life and/or work due to your illness (e.g., financial issues; changes in illness or a new illness)

Never (1)

Sometimes (2)

Mostly or Always (3)

(5) Make changes to any part of your diet (food or fluids), your activities, or your medications due to a change in your illness

Never (1)

Sometimes (2)

Mostly or Always (3)

(6) Managing discomfort and pain

Never (1)

Sometimes (2)

Mostly or Always (3)

Physical tasks

(1) Ask for or need help with household chores (e.g., preparing meals, cleaning your home, doing laundry, grocery shopping)

Never (1)

Sometimes (2)

Mostly or Always (3)

(2) Ask for or help with self-care (e.g. eating, dressing, bathing)*

Never (1)

Sometimes, Mostly or Always (2)

(3) Dealing with physical limitations

Never (1)

Sometimes (2)

Mostly or Always (3)

Miscellaneous (all coded initially as never, sometimes, mostly, always)

(1) Check things such as blood pressure or blood sugar levels

(2) Take medications daily

(3) (if you are working): Miss work, have to leave early, work shorter hours or struggle to complete all your work