Instrument | Aim of the Instrument | Subscales in the instrument | # Subscales | Mental health subscales | Mental wellbeing subscales | Physical wellbeing | Studies |
---|---|---|---|---|---|---|---|
Beck Hopelessness scale | Hopelessness | Feelings about the future Loss of motivation Expectations | 3 | ✓ (n = 3) | [31] | ||
Cerebral Palsy Quality of Life Questionnaire-Teen | QoL in adolescents living with Cerebral Palsy | Global QoL, social wellbeing, emotional wellbeing, school wellbeing, physical wellbeing, participation, communication, pain | 8 | ✓ (n = 5) | ✓ (n = 3) | ||
Child Youth Resilience Measurement (CYRM-28) | Measures resilience | Individual, relational, community, cultural | 4 | ✓ (n = 4) | [41] | ||
Cystic Fibrosis Questionnaire (CFQ) | Measures HRQoL in patients with Cystic Fibrosis | Physical, role limitations/ school performance, energy/wellbeing, emotional state, social limitations | 5 | ✓ (n = 2) | ✓ (n = 3) | [51] | |
EQ-5D-Y | Measure HRQoL | Mobility, looking after myself, doing usual activities, having pain or discomfort and feeling worried, sad or unhappy | 5 | ✓ (n = 1) | ✓ (n = 1) | ✓ (n = 3) | [43] |
FACIT-Sp-12 Spiritual Well-Being Scale | Measure Spiritual Wellbeing | Spiritual Well-Being, Meaning, Peace, Faith | 4 | ✓ (n = 4) | [35] | ||
Healthcare Needs Scale for Youth with Congenital Heart Disease (HNS-CHD) | Measure of Healthcare Needs | Health, family, individual, interpersonal and policy needs | 5 | ✓ (n = 2) | ✓ (n = 1) | [32] | |
Hunter Opinions and Personal Expectations Scale (HOPES) | Measure of hope and despair for adolescents and adults | Hope, despair, global personal happiness | 3 | ✓ (n = 1) | ✓ (n = 2) | [51] | |
KIDSCREEN-10 | Measure HRQoL in children and adolescents | Unidimensional construct of HRQOL | 1 | ✓ (n = 1) | ✓ (n = 1) | [34] | |
KIDSCREEN-27 | Measure HRQoL in children and adolescents | Physical Well-Being, Psychological Well-Being, Autonomy & Parents, Peers & Social Support and School Environment | 5 | ✓ (n = 4) | ✓ (n = 1) | ||
KIDSCREEN-52 | Measure HRQoL in children and adolescents | Physical, Psychological Wellbeing, Moods and Emotions, Self-Perception, Autonomy, Parent Relations and Home Life, Social Support and Peers, School Environment (6 items), Social Acceptance (Bullying), Financial Resources | 10 | ✓ (n = 8) | ✓ (n = 1) | ||
Paediatric Quality of Life Inventory (Peds-QL) | Measure HRQoL | Physical Functioning (8 items) Emotional Functioning (5 items) Social Functioning (5 items) School Functioning (5 items) | 4 | ✓ (n = 3) | ✓ (n = 1) | ||
Quality of Life in Short Stature Youth (QoLISSY | Measures QoL | Physical, Social, Emotional, Coping, Treatment, Beliefs | 6 | ✓ (n = 4) | ✓ (n = 2) | [48] | |
Tennessee Self-Concept Scale | Measures self-concept | Physical, moral, personal, family, social, academic | 6 | ✓ (n = 5) | ✓ (n = 1) | [31] | |
Vécu et Santé Perçue des Adolescents (VSP-A) | Measure HRQoL | Vitality, Psychological Well-being, Relationships with Friends, Leisure Activities, Relationships with Parents, Physical Well-being, Relationships with Teachers, School Performance, Body Image and Relationships with Medical Staff | 10 | ✓ (n = 8) | ✓ (n = 2) | [49] | |
WHO-5 wellbeing index | Measures current mental wellbeing | Mental /Emotional wellbeing (unidimensional) | 1 | ✓ (n = 1) | |||
WHO Quality of Life-BREF | Measures QoL | Physical health, psychological health, social relationship and environment | 4 | ✓ (n = 3) | ✓ (n = 1) | [32] | |
Center for Epidemiological Studies Depression | Symptoms of depression | Depressive affect Somatic complaints Positive affect Interpersonal activity | 4 | ✓ (n = 4) | ✓ (n = 1) | [37] | |
Child Depression Inventory (CDI) | Symptoms of depression | Anhedonia, negative mood/physical symptoms, negative self-esteem, interpersonal problems, Ineffectiveness | 5 | ✓ (n = 5) | [31] | ||
Child Depression Inventory—Short Form | Symptoms of depression | Negative mood/physical symptoms, negative self-esteem, interpersonal problems, ineffectiveness | 4 | ✓ (n = 4) | [30] | ||
Paediatric Quality of Life Inventory Diabetes Module (PedsQL-DMTM) | Measure HRQoL in adolescents with Diabetes | general concerns about diabetes, treatment, worry, and communication | 4 | ✓ (n = 1) | ✓ (n = 1) | ✓ (n = 2) | [42] |
Revised Children’s Manifest Anxiety Scale | Measures symptoms of anxiety in children and adolescents | Psychological anxiety, worry/oversensitivity, social concerns/concentration | 3 | ✓ (n = 3) | [30] | ||
Strengths and Difficulties Questionnaire (SDQ) | Emotional and Behavioural Screening Questionnaire | Emotional symptoms subscale Conduct problems subscale Hyperactivity/inattention subscale Peer relationships problem subscale Prosocial behaviour subscale | 5 | ✓ (n = 5) | |||
The questionnaire on health needs for adolescents | Measure of Healthcare Needs | physical health, reproductive health, mental health, interpersonal concerns and behavioural concerns | 5 | ✓ (n = 3) | ✓ (n = 2) | [32] | |
Child Health Questionnaire (CHQ) | Measure HRQoL | General health perceptions, physical functioning, role/social physical functioning, bodily pain, role/social emotional functioning, role/social behavioural functioning, parent impact-time, parent impact-emotion, self-esteem, mental health, behaviour, family activities, family cohesion, change in health | 14 | ✓ (n = 1) | ✓ (n = 7) | ✓ (n = 3) | [37] |
Diabetes Stress Questionnaire | Measures Diabetes stressors | Distress-Worry, Peer Stress, Adverse-Personal Effects, Parental Stress, Hyperglycemia, Self-Care, Diet, and Hypoglycemia | 8 | ✓ (n = 5) | ✓ (n = 1) | ✓ (n = 3) | [42] |
Monitoring Individual Needs in Diabetes Youth Questionnaire (MY-Q) | Measure HRQoL in adolescents with Diabetes | General QoL, the teenagers’ social life (friends, family, and school), diabetes management (worries, treatment barriers, self-efficacy and satisfaction, and problematic eating), and emotional well-being | 4 | ✓ (n = 1) | ✓ (n = 4) | ✓ (n = 1) | [36] |
Patient-Reported Outcomes Measurement Information System (PROMIS) peadiatric profile -25 | Measure that evaluates and monitors physical, mental, and social health in adolescents and children (HRQoL) | anxiety, depressive symptoms, fatigue, pain interference, physical function-mobility, and peer relationships as well as a single pain intensity item | 7 | ✓ (n = 2) | ✓ (n = 1) | ✓ (n = 4) | |
Quality of Life Profile for Chronic Diseases (PLC) | Measures HRQoL in chronic patients | Capacity, positive mood, negative mood, ability to relax and enjoy, sense of belonging to others, contact ability | 6 | ✓ (n = 1) | ✓ (n = 4) | ✓ (n = 2) | [40] |
Questions on Life Satisfaction (FLZ) | Measures subjective QoL | Friends/acquaintances, leisure, general health, income, occupation, housing, family life, partner relationship/sexuality, physical, ability to relax, energy, mobility, vision & hearing, freedom from anxiety, freedom from pain, independence from help | 16 | ✓ (n = 1) | ✓ (n = 7) | ✓ (n = 5) | [40] |
Short Form 36 Health Survey (SF-36) | Measure HRQoL | Limitations in physical activities because of health problems Limitations in social activities because of physical or emotional problems Limitations in usual role activities because of physical health problems Bodily pain General mental health (psychological distress and well-being) Limitations in usual role activities because of emotional problems Vitality (energy and fatigue) General health perceptions | 8 | ✓ (n = 3) | ✓ (n = 1) | ✓ (n = 5) | [40] |