Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments

Orth, Zaida; van Wyk, Brian

doi:10.1186/s40359-021-00680-w

Table 2 Characteristics of included studies (N = 22)

From: Measuring mental wellness among adolescents living with a physical chronic condition: a systematic review of the mental health and mental well-being instruments

References	Country and setting	Sample size	Age range (in years)	Chronic condition	Instruments
Boyes et al. [30]	South Africa, Eastern Cape	1060	10–19	HIV	Child Depression Inventory—Short Form (translated to Xhosa) Revised Children’s Manifest Anxiety Scale (translated to Xhosa)
Cavasos-Rehg et al. [31]	Uganda, Southwest Uganda	702	10–16	HIV	Beck Hopelessness scale Children's Depression Inventory Tennessee Self-Concept Scale (All three instruments were adapted to be culturally appropriate in the Ugandan context)
Chen et al. [32]	Taiwan	500	15–20	Congenital Heart Disease	Healthcare Needs Scale for Youth with Congenital Heart Disease (Mandarin) The questionnaire on health needs for adolescents (Mandarin) WHO Quality of Life-BREF (Taiwan version)
Cox et al. [33]	United States of America, Wisconsin	195	8–17	Asthma, Diabetes, Sickle cell disease	Patient-Reported Outcomes Measurement Information System (PROMIS)
Davis et al. [34]	Australia, Melbourne & Queensland	87	12–18	Cerebral Palsy	Cerebral Palsy Quality of Life Questionnaire-Teen KIDSCREEN-10 Paediatric Quality of Life Inventory
De Alvegera et al. [35]	Brazil, São Paulo	212	12–17	Chronic Illness (cancer, type 1 diabetes, cystic fibrosis)	The FACIT-Sp-12 Spiritual Well-Being Scale (Translated to Portuguese)
De Wit et al. [36]	Netherlands, Rotterdam & Amsterdam	84	8–18	Type 1 Diabetes	Monitoring Individual Needs in Diabetes Youth Questionnaire (MY-Q) (Dutch version) Paediatric Quality of Life Inventory (Dutch version) WHO-5 wellbeing index (Dutch version)
De Wit et al. [37]	Netherlands, North Holland	91	13–17	Type 1 Diabetes	WHO-5 wellbeing index (Dutch version) Center for Epidemiologic Studies Depression Scale (CES-D) (Dutch version) Child Health Questionnaire (CHQ-CF87) (Dutch version)s
Gentz et al. [38]	Namibia, Windhoek	99	12–18	HIV	Strengths and Difficulties Questionnaire (Oshimwaba and English versions)
Glowacki et al. [39]	Poland, Poznan	36	10–17	Adolescent Idiopathic Scoliosis	Strengths and Difficulties Questionnaire (Polish version)
Goldbeck et al. [40]	Germany, Southern Germany	70	16–38	Cystic Fibrosis	The Short Form 36 Health Survey (SF-36) (German version) The Quality of Life Profile for Chronic Diseases (PLC) (German) The Questions on Life Satisfaction (FLZ) (German)
Kaunda-Khangamwa et al. [41]	Malawi, Blantyre	406	15–19	HIV	Child Youth Resilience Measurement (CYRM-28) (translated to Chicewa)
Klages et al. [42]	United States of America, Tennesee	181	12–18	Diabetes	Diabetes Stress Questionnaire The Pediatric Quality of Life Inventory 3.2 Diabetes module
Mayoral et al. [43]	Spain, Barcelona	136	8–19	Type 1 Diabetes	EQ-5D-Y (Spanish version) KIDSCREEN-27 (Spanish version) Strengths and Difficulties Questionnaire (Spanish version)
Misterka et al. [44]	Poland, Poznan	52	11–18	Juvenile Idiopathic Arthritis	Strength and Difficulties Questionnaire (Polish version)
Pavlova et al. [45]	Canada, Alberta	147	8–18	Chronic Pain	Patient-Reported Outcomes Measurement Information System (PROMIS)
Power et al. [46]	Bangladesh, Sirajganj district	154	10–18	Cerebral Palsy	Cerebral Palsy Quality of Life Questionnaire-Teen (translated to Bengali) Bengali version Kidscreen-27 Bengali version Strengths and difficulties questionnaire
Ramirez-Hernandez et al. [47]	Mexico, Mexico City	71	8–18	Strabismus	Kidscreen-52 Spanish version
Rohenkal et al. [48]	Netherlands, Hilversum	49	8–18	Short Stature	Quality of Life in Short Stature Youth (QoLISSY) (translated to Dutch) KIDSCREEN-52 (Dutch version)
Sapin et al. [49]	France	1938	10–17	180 inpatient youth (asthma & diabetes) 254 chronic disease	Vécu et Santé Perçue des Adolescents (VSP-A) (French)
Soltani et al. [50]	Canada, Alberta	145	8–18	Chronic Pain	Patient-Reported Outcomes Measurement Information System (PROMIS) The Paediatric Quality of Life Inventory (Peds-QL)
Szyndler et al. [51]	Australia, Sydney	52	12–18	Cystic Fibrosis	The Cystic Fibrosis Questionnaire (CFQ) The Hunter Opinions and Personal Expectations Scale (HOPES)

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