From: Being parent of a child with congenital heart disease, what does it mean? A qualitative research
Themes | Major Subcategory | Subcategory |
---|---|---|
Emotional breakdown (n = 28) | Denial (n = 25) | |
Shock (n = 23) | ||
Sadness (n = 21) | ||
Isolation (n = 20) | ||
Feeling guilty (n = 17) | ||
The most difficult moment in parenting life (n = 15) | ||
The catastrophic burden of care (n = 25) | Suffering from child care (n = 24) | Constant self-sacrifice (n = 23) |
Restriction (n = 22) | ||
Painful waiting (n = 20) | ||
Exhausting search (n = 18) | ||
Suffering from the judgment and curiosity of others (n = 15) | ||
Delayed vaccination and circumcision stress (n = 15) | ||
Being responsible for diagnosis, treatment and child care (n = 20) | Parental distress over the child being hospitalized (n = 19) | |
Anxiety related to invasive procedure (n = 18) | ||
Mental turbulence (n = 17) | ||
Taking care of other disease of the child (n = 17) | ||
The need to strive to provide the best medical care (n = 19) | ||
Turn to spirituality (n = 21) | Feeling the orphans and helping the poor (n = 20) | |
Trust in God (n = 17) | ||
To undergo a divine test (n = 16) | ||
The hard road (n = 19) | Emotional separation of parents (n = 18) | |
Harsh living conditions (n = 17) |