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Table 2 Meaning of being parent of a child with CHD

From: Being parent of a child with congenital heart disease, what does it mean? A qualitative research

Themes Major Subcategory Subcategory
Emotional breakdown (n = 28) Denial (n = 25)  
Shock (n = 23)
Sadness (n = 21)
Isolation (n = 20)
Feeling guilty (n = 17)
The most difficult moment in parenting life (n = 15)
The catastrophic burden of care
(n = 25)
Suffering from child care (n = 24) Constant self-sacrifice (n = 23)
Restriction (n = 22)
Painful waiting (n = 20)
Exhausting search (n = 18)
Suffering from the judgment and curiosity of others (n = 15)
Delayed vaccination and circumcision stress (n = 15)
Being responsible for diagnosis, treatment and child care (n = 20) Parental distress over the child being hospitalized (n = 19)
Anxiety related to invasive procedure (n = 18)
Mental turbulence (n = 17)
Taking care of other disease of the child (n = 17)
The need to strive to provide the best medical care (n = 19)  
Turn to spirituality (n = 21) Feeling the orphans and helping the poor (n = 20)  
Trust in God (n = 17)
To undergo a divine test (n = 16)
The hard road (n = 19) Emotional separation of parents (n = 18)
Harsh living conditions (n = 17)