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Table 2 Measurement overview caregivers

From: A blended psychosocial support program for partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: protocol of a randomized controlled trial

  

Measurementa

Outcome

Instrument

T0

T1

T2

T3

Socio-demographics

 Caregiver, patient, and care characteristics

iMTA Valuation of Informal Care Questionnaire

x

   

Primary outcome

 Psychological distress

Hospital Anxiety and Depression Scale

x

x

x

x

Secondary outcomes

 Quality of life

Care-related Quality of Life −7 + Care-related Quality of Life - VAS

x

x

x

x

 Burden

Zarit Burden Interview + Self-Rated Burden scale

x

x

x

x

Mediator

 Self-efficacy

Revised scale for caregiving self-efficacy

x

x

x

x

Covariates

     

 Satisfaction with relationship

Satisfaction Questionnaire

x

x

x

x

 Social Support

Multidimensional Scale of Perceived Social Support

x

x

x

x

 Behavioral changes patient

Amyotrophic Lateral Sclerosis-Frontotemporal Dementia- Questionnaire

x

x

x

x

 Physical functioning patient

Amyotrophic Lateral Sclerosis Functional Rating Scale- Revised

x

x

x

x

Evaluation

 Evaluation intervention

Client Satisfaction Questionnaire + Self developed scale

 

xb

 

xc

  1. aT0 = Baseline, T1 = 3 months, T2 = 6 months, T3 = 9 months
  2. bonly for the intervention group
  3. conly for the wait-list control group