Table 1 Overview of instruments and related constructs
Construct | Instrument | Domains |
|---|---|---|
Psychosocial well-being | The General Health Questionnaire-28 (GHQ-28) | 28 item general scale measuring emotional distress. Four subscales (somatic symptoms, anxiety/insomnia, social dysfunction and serious depression |
Psychosocial well-being | The Stroke and Aphasia Quality of Life scale (SAQOL-39) | Disease-specific quality of life scale, measures patient’s perspective of stroke’s impact on ‘physical’, ‘psychosocial’ and ‘communication’ domains. |
Sense of coherence | Sense of Coherence scale (SOC-13) | Self-report questionnaire, 13 components, measuring the main concepts in the SOC theory; coherence, meaningfulness and manageability. 13 items scored on a Likert scale, ranging from 1 to 7. Higher scores indicate a stronger SOC. |
Depression and anxiety | The Yale Brown single item questionnaire (Yale) | One yes/ no question |
Fatigue | Lee’s Fatigue scale-5 (Lee-5) | A 0–10 scale assessing symptoms of fatigue |
Fatigue | Fatigue Questionnaire-2 (FQ-2) | One yes/ no question, If yes; length of symptoms. |
Demographics | Â | Age, gender, ethnic background, education, type of work/studies, marital status, living condition, family/network, place of living (urban/rural) |
Medical information | Â | Time of stroke, type / localization of stroke, type of medical treatment after stroke, medication, other chronic diseases, earlier depression / mental disorders, rehabilitation services provided, type and amount of health care/practice assistance provided in the community. |
Stroke severity | National Institutes of Health Stroke Scale (NIHSS) | A questionnaire used by healthcare providers to objectively quantify the impairment caused by a stroke. |
Aphasia | The Ullevaal Aphasia Screening Test (UAS) | Screening for aphasia. |