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Table 2 Demographic and clinical characteristics for youth with type 1 diabetes (N = 781) and parents (N = 826)

From: Diabetes MILES Youth–Australia: methods and sample characteristics of a national survey of the psychological aspects of living with type 1 diabetes in Australian youth and their parents

  Youth (N = 781) Parents (N = 826) NDSS Registrants aged 10–19 years (N = 9856)a
Gender–female 474 (61) 727 (88) 4672 (47)
 Child’s gender–female - 384 (47) -
Age–years 14 ± 3 46 ± 6 16 ± 3
 Child’s age–years   14 ± 3  
Youth/child’s age group–years    
 10–12 230 (29) 285 (35) 2078 (21)
 13–15 277 (35) 292 (35) 2986 (30)
 16–17 153 (20) 155 (19) 2312 (23)
 18–19 121 (15) 94 (11) 2480 (25)
State/Territory    
 New South Wales 211 (27) 205 (25) 2980 (30)
 Victoria 184 (24) 248 (30) 2512 (25)
 Queensland 182 (23) 162 (20) 2139 (22)
 Western Australia 87 (11) 92 (11) 985 (10)
 South Australia 68 (9) 70 (8) 743 (8)
 Tasmania 33 (4) 21 (2) 260 (3)
 Australian Capital Territory 15 (2) 23 (3) 179 (2)
 Northern Territory 1 (<1) 4 (<1) 58 (<1)
Geographical area (N = 755) (N = 810)  
 Major cities 517 (68) 546 (67) 6692 (69)
 Inner regional 168 (22) 192 (24) 2188 (22)
 Outer regional & remote 70 (9) 72 (9) 876 (9)
Socio-economic status–IRSAD (N = 754) (N = 810)  
 Low (1–3) 130 (17) 121 (15) 2210 (23)
 Medium (4–7) 284 (38) 319 (39) 4069 (42)
 High (8–10) 340 (45) 370 (46) 3468 (36)
Cultural/ethnic background    
 Aboriginal or Torres Strait Islander 14 (2) 9 (1) 188 (2) (N = 8595)
 Country of birth–Australia 715 (92) 659 (80) 5447 (87) (N = 6280)
 Main language spoken at home–English 759 (97) 808 (98) -
Child lives with (N = 758) - -
 2 parents (biological or adoptive) 624 (82)   
 2 parents–one a step-parent 50 (7)   
 Single parent family 85 (11)   
Youth/child’s diabetes    
 Age at diagnosis (years) 9 ± 4 8 ± 4 9 ± 4
 Diabetes duration (years) 6 ± 4 (0–18) 6 ± 4 (0–16) 6 ± 4 (0–19)
 Treatment regimen–CSII 409 (52) 436 (53) 4084 (41)b
 Self-reported HbA1c–mmol/mol (%) (N = 650) 65 ± 18 (8.1 ± 1.6 %) 64 ± 16 (8.0 ± 1.4) -
Occupation (N = 773) (N = 739) -
 School student 676 (87) 0  
 Tertiary student (university) 51 (6) 0  
 Employed/self-employed, full/part time 22 (3) 570 (77)  
 Apprenticeship or trade training 13 (2) 0  
 Unemployed/Looking for work 11 (1) 22 (3)  
 Homemaker/Carer/Volunteer 1 (<1) 130 (18)  
 Other 11 (1) 17 (2)  
Parents’ marital status - (N = 823) -
 Married   651 (79)  
 De facto (living together)   57 (7)  
 Relationship (living apart)   9 (1)  
 Single   11 (1)  
 Separated/divorced   84 (10)  
 Widowed   11 (1)  
Parents’ highest level of education - (N = 740) -
 ≤year 10   98 (13)  
 Completed year 12   103 (14)  
 Trade/diploma   222 (30)  
 University   317 (43)  
Annual household income ($) - (N = 711) -
 Up to 20,000   14 (2)  
 20,001–40,000   47 (7)  
 40,001–60,000   66 (9)  
 60,001–80,000   87 (12)  
 80,001–100,000   126 (18)  
 >100,001   264 (37)  
 Prefer not to answer   107 (15)  
  1. Unless otherwise stated, data are n (%) or mean ± SD (range)
  2. Total N reported in this table not always consistent with total sample size due to missing data on some items
  3. IRSAD Index of Relative Social Advantage and Disadvantage, CSII Continuous subcutaneous insulin infusion
  4. aTotal number of NDSS Registrants with type 1 diabetes aged 10–19 years at November 2014
  5. bAs at June 2014