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Table 2 Demographic and clinical characteristics for youth with type 1 diabetes (N = 781) and parents (N = 826)
| Youth (N = 781) | Parents (N = 826) | NDSS Registrants aged 10–19 years (N = 9856)a | |
|---|---|---|---|
| Gender–female | 474 (61) | 727 (88) | 4672 (47) |
| Child’s gender–female | - | 384 (47) | - |
| Age–years | 14 ± 3 | 46 ± 6 | 16 ± 3 |
| Child’s age–years | 14 ± 3 | ||
| Youth/child’s age group–years | |||
| 10–12 | 230 (29) | 285 (35) | 2078 (21) |
| 13–15 | 277 (35) | 292 (35) | 2986 (30) |
| 16–17 | 153 (20) | 155 (19) | 2312 (23) |
| 18–19 | 121 (15) | 94 (11) | 2480 (25) |
| State/Territory | |||
| New South Wales | 211 (27) | 205 (25) | 2980 (30) |
| Victoria | 184 (24) | 248 (30) | 2512 (25) |
| Queensland | 182 (23) | 162 (20) | 2139 (22) |
| Western Australia | 87 (11) | 92 (11) | 985 (10) |
| South Australia | 68 (9) | 70 (8) | 743 (8) |
| Tasmania | 33 (4) | 21 (2) | 260 (3) |
| Australian Capital Territory | 15 (2) | 23 (3) | 179 (2) |
| Northern Territory | 1 (<1) | 4 (<1) | 58 (<1) |
| Geographical area | (N = 755) | (N = 810) | |
| Major cities | 517 (68) | 546 (67) | 6692 (69) |
| Inner regional | 168 (22) | 192 (24) | 2188 (22) |
| Outer regional & remote | 70 (9) | 72 (9) | 876 (9) |
| Socio-economic status–IRSAD | (N = 754) | (N = 810) | |
| Low (1–3) | 130 (17) | 121 (15) | 2210 (23) |
| Medium (4–7) | 284 (38) | 319 (39) | 4069 (42) |
| High (8–10) | 340 (45) | 370 (46) | 3468 (36) |
| Cultural/ethnic background | |||
| Aboriginal or Torres Strait Islander | 14 (2) | 9 (1) | 188 (2) (N = 8595) |
| Country of birth–Australia | 715 (92) | 659 (80) | 5447 (87) (N = 6280) |
| Main language spoken at home–English | 759 (97) | 808 (98) | - |
| Child lives with | (N = 758) | - | - |
| 2 parents (biological or adoptive) | 624 (82) | ||
| 2 parents–one a step-parent | 50 (7) | ||
| Single parent family | 85 (11) | ||
| Youth/child’s diabetes | |||
| Age at diagnosis (years) | 9 ± 4 | 8 ± 4 | 9 ± 4 |
| Diabetes duration (years) | 6 ± 4 (0–18) | 6 ± 4 (0–16) | 6 ± 4 (0–19) |
| Treatment regimen–CSII | 409 (52) | 436 (53) | 4084 (41)b |
| Self-reported HbA1c–mmol/mol (%) (N = 650) | 65 ± 18 (8.1 ± 1.6 %) | 64 ± 16 (8.0 ± 1.4) | - |
| Occupation | (N = 773) | (N = 739) | - |
| School student | 676 (87) | 0 | |
| Tertiary student (university) | 51 (6) | 0 | |
| Employed/self-employed, full/part time | 22 (3) | 570 (77) | |
| Apprenticeship or trade training | 13 (2) | 0 | |
| Unemployed/Looking for work | 11 (1) | 22 (3) | |
| Homemaker/Carer/Volunteer | 1 (<1) | 130 (18) | |
| Other | 11 (1) | 17 (2) | |
| Parents’ marital status | - | (N = 823) | - |
| Married | 651 (79) | ||
| De facto (living together) | 57 (7) | ||
| Relationship (living apart) | 9 (1) | ||
| Single | 11 (1) | ||
| Separated/divorced | 84 (10) | ||
| Widowed | 11 (1) | ||
| Parents’ highest level of education | - | (N = 740) | - |
| ≤year 10 | 98 (13) | ||
| Completed year 12 | 103 (14) | ||
| Trade/diploma | 222 (30) | ||
| University | 317 (43) | ||
| Annual household income ($) | - | (N = 711) | - |
| Up to 20,000 | 14 (2) | ||
| 20,001–40,000 | 47 (7) | ||
| 40,001–60,000 | 66 (9) | ||
| 60,001–80,000 | 87 (12) | ||
| 80,001–100,000 | 126 (18) | ||
| >100,001 | 264 (37) | ||
| Prefer not to answer | 107 (15) |
