Variables | Measures | Baseline (T0) | T1* | T2Φ | T3‡ |
---|---|---|---|---|---|
Fear of new or recurrent melanoma | Fear of Cancer Recurrence Inventory | ✓ | ✓ | ✓ | ✓ |
Depression, anxiety, stress and depression | Depression Anxiety and Stress Scales (DASS-21) | ✓ | ✓ | ✓ | ✓ |
Health related quality of life | AQOL-8D and FACT-M | ✓ | ✓ | ✓ | |
Knowledge | A 9 item scale specifically developed for this study | ✓ | ✓ | ✓ | ✓ |
Healthy behavioural adjustment to melanoma risk | The Sun Protection Habits Scale (SPHS) and adapted items for sun protection and skin self examination | ✓ | ✓ | ✓ | |
Satisfaction with clinical care | Consultation Satisfaction Questionnaire (CSQ) | ✓ | ✓ | ✓ | |
Unmet information and support needs | Modified Cancer Survivors’ Unmet Needs (CaSUN) | ✓ | ✓ | ✓ | |
Resource use and cost outcomes | Items developed for this study (resource use) and Medicare data (PBS and MBS) | ✓ | ✓ | ✓ | |
Health literacy | ✓ | ||||
Medical record | From the melanoma clinics’ databases | ✓ | ✓ | ✓ | |
Process evaluation | Developed for use in this study. | ✓ | ✓ | ||
Demographic and other risk factors | Age, gender, marital status, number of children, education, income, occupation | ✓ |