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Table 3 Item descriptive statistics for Burden of Knowing (BK) and Family Connectedness (FC) scales (n = 243)

From: Development and preliminary testing of the psychosocial adjustment to hereditary diseases scale

Scale & Items

X

SD

Missing (%)

Response Values Frequency

0

1

2

3

4

Burden of Knowing (BK)

24.8

8.4

9.5%

     

• Dwelling on carrier status (BK11_R)

3.1

1.1

0.8

5

24

36

65

111

• Difficulty modifying screening regime (BK14_R)

2.8

1.4

1.6

28

17

41

34

119

• Concerns with non-acceptance by others (BK15_R)

3.4

1.2

2.5

13

14

12

27

171

• Difficulty dealing with young people (BK17_R)

1.8

1.4

3.3

59

43

59

28

46

• Worry about young people’s future (BK18_R)

1.4

1.3

1.2

80

58

49

39

14

• Stress of cancer alters family relations (BK19_R)

2.8

1.3

1.6

17

33

39

40

110

• Screening reminder of personal risk (BK20_R)

2.2

1.5

1.2

50

37

44

39

70

• Concerns about impact on family relations (BK24_R)

3.3

1.2

0.4

13

15

24

25

165

• Worry about burden of cancer on family (BK25_R)

2.3

1.4

0.8

30

44

54

49

64

• Screening heightens cancer worry (BK27_R)

1.9

1.5

0.8

63

46

41

45

46

Family Connectedness (FC)

20.4

5.6

4.5

     

• Encourage young people to talk about cancer (FC16)

3.0

1.1

1.2

10

18

49

60

103

• Feeling supported facilitates acceptance (FC21)

2.9

1.2

0.4

13

21

41

77

90

• Easy to seek help from family (FC22)

3.0

1.2

0.8

13

18

34

67

109

• Important to openly discuss family cancer (FC23)

3.4

0.8

0.4

0

8

27

62

145

• Caring for others promotes personal acceptance (FC26)

2.3

1.4

1.6

37

31

50

66

55

• Relieved by availability of genetic testing (FC28)

2.9

1.2

1.6

10

21

42

66

100

• Supportive others promotes healthy behaviors (FC29)

3.0

1.1

0.4

11

16

33

78

104