From: Development and preliminary testing of the psychosocial adjustment to hereditary diseases scale
Scale & Items | X | SD | Missing (%) | Response Values Frequency | ||||
---|---|---|---|---|---|---|---|---|
0 | 1 | 2 | 3 | 4 | ||||
Burden of Knowing (BK) | 24.8 | 8.4 | 9.5% | Â | Â | Â | Â | Â |
• Dwelling on carrier status (BK11_R) | 3.1 | 1.1 | 0.8 | 5 | 24 | 36 | 65 | 111 |
• Difficulty modifying screening regime (BK14_R) | 2.8 | 1.4 | 1.6 | 28 | 17 | 41 | 34 | 119 |
• Concerns with non-acceptance by others (BK15_R) | 3.4 | 1.2 | 2.5 | 13 | 14 | 12 | 27 | 171 |
• Difficulty dealing with young people (BK17_R) | 1.8 | 1.4 | 3.3 | 59 | 43 | 59 | 28 | 46 |
• Worry about young people’s future (BK18_R) | 1.4 | 1.3 | 1.2 | 80 | 58 | 49 | 39 | 14 |
• Stress of cancer alters family relations (BK19_R) | 2.8 | 1.3 | 1.6 | 17 | 33 | 39 | 40 | 110 |
• Screening reminder of personal risk (BK20_R) | 2.2 | 1.5 | 1.2 | 50 | 37 | 44 | 39 | 70 |
• Concerns about impact on family relations (BK24_R) | 3.3 | 1.2 | 0.4 | 13 | 15 | 24 | 25 | 165 |
• Worry about burden of cancer on family (BK25_R) | 2.3 | 1.4 | 0.8 | 30 | 44 | 54 | 49 | 64 |
• Screening heightens cancer worry (BK27_R) | 1.9 | 1.5 | 0.8 | 63 | 46 | 41 | 45 | 46 |
Family Connectedness (FC) | 20.4 | 5.6 | 4.5 | Â | Â | Â | Â | Â |
• Encourage young people to talk about cancer (FC16) | 3.0 | 1.1 | 1.2 | 10 | 18 | 49 | 60 | 103 |
• Feeling supported facilitates acceptance (FC21) | 2.9 | 1.2 | 0.4 | 13 | 21 | 41 | 77 | 90 |
• Easy to seek help from family (FC22) | 3.0 | 1.2 | 0.8 | 13 | 18 | 34 | 67 | 109 |
• Important to openly discuss family cancer (FC23) | 3.4 | 0.8 | 0.4 | 0 | 8 | 27 | 62 | 145 |
• Caring for others promotes personal acceptance (FC26) | 2.3 | 1.4 | 1.6 | 37 | 31 | 50 | 66 | 55 |
• Relieved by availability of genetic testing (FC28) | 2.9 | 1.2 | 1.6 | 10 | 21 | 42 | 66 | 100 |
• Supportive others promotes healthy behaviors (FC29) | 3.0 | 1.1 | 0.4 | 11 | 16 | 33 | 78 | 104 |